Family frustations

Everyone wants to please his/her family it just a natual thing. But often thing it is the hardest group o people to please. I'm finding that to be the case with my mom. She dead set against this Wright State thing. At this point in my life I don't care what people think the exception to that is my family especially my mom. My mom and I got really close got really close after my dad left and we been throught a lot of stuff together. Having a disagreement with her on something this big doesn't set well with me. But recently we haven't seen eye to eye alot of things. She doesn't like me being more vocal about my disability. She doesn't like that I started wearing diapers again. She dislikes my beard. She never been overly fond of me as a teacher.

It not like she has changed, she has aways was like this. I use to be like her, I use to believe the way disabled people to sucessful is to act non-disabled and it is, but it hollow success the kind of sucess that disappears in a heartbeat. If if you be yourself it may take you longer to achive sucess, but your sucess will last. I learned this throught this exprience though people I met. I know by speaking about my cp I can help others with it. I with I could make her see what I see. I now going to Wright State next fall is the best thing not only for me but the people I'm trying to help. I know I can't sit in Columbus I do nothing that's just not a option, especially after the thing with Alex. There are Kids out there that need help, I want help them and I feel like I can't help without my masters and my lincense. The main issue my mom is bring up is my health, yea I admit it is a issue but i has been better, with the exception of a bad spell at the end of April.

I guess all I can do is proceed as planned and hope mom comes around. I know in my heart this is the right thing. I just have put it in god's hands.

Idiot Wind

My relationship with Easter Seals which started in the 1980's when I was a student in there special needs preschool has come to a end. I wish I could say it was a mutal decison, but it wasn't, I was asked to leave. It had to do with my buddy Alex I have talked about in previous blogs. Alex demonstares some Austisic charistics that doesn't necessary nean he has Austism it just means you have to keep a eye on him. Well, last Wednesday I was volunteering in Alex's class, he was having a really bad day. He was really unfocused and acting out. At the end day Alex started to bang his head into a wooden cubbie. After the kids had left I talked to his teacher and expressed my concerned. She just blew me off, she told me Alex came to Easter Seals for a language delay and now that was fixed. now he was typical. That he was head banging for attention.
Now I've been working with kids for a while now and typical kids don't head bang for any reason. Especially when they never been expoused to that behavior and Alex hasn't. None of the other kids in his class head bang. believe me I know that class like the back of my hand. It not like I'm freaking like I've never seen this stuff abefore at the county I got a steady diet of self injury and when I was sick I cut the hell out of myself.

So I took my concerns to a survisor, she basiclly what the teacher said. I wasn't satisfide, but I was going to let it go. But the teacher found out I went to the supvisor and was outraged. To make a long story short she made a big stink and got me tossed out of Easter Seals. They say I over stepped my bounds as a volunteer. I'm not just a a volunteer, I have a degree in special ed and been around the disabled since i was born. Plus I interen there a couple year ago. The big loser in this fiasco is Alex even if there nothing wrong with him there is enough there to warrant more evelation, better error in the side of caution. But nothing will be done because the teacher is too stubborn to admit she might be wrong.


I am hurt and sadden by this exprience. I throught this teacher was my friend and Easter Seals saw me as a person not just a piece of meat. I was wrong on both accounts But I'll move on, I have there people out there that need my help. People like Alex, who unfortunly I will prolly never see again. I wish him all the best. And who knows our paths migth cross one day.

Strange days indeed

Had a interesting day today, it was Wednesday my day at Easter Seals. This boy Liam who never comes came. Liam has Autism, for those who don't know some people with Autism have trouble making eye contact with others especially with those whom they don't know, Liam is such a person. Liam doesn't know me well since I'm only there one day a week and he rarely comes anyway. What does he do he comes in to the room looks me right in the eye and give me a cute little smile, made my day. So thing go on and we did an activity for mother's day his teacher had planned, then we played. All of a sudden his mood change he was running around the room, grabbing me and ramming his head into me. His teacher said he's never acted like this ever. Liam and the rest of the class went to the gross motor room and I started to feel werid. I excused myself to go get a drink at a the water fondin. Liz went with me at the fondin I had a seizure. It was a minor one but it was a seizure. Easter Seals having no clue about seizures with there steady diet of students with speech and gross motor delays bless there hearts freaked and called the medics. The medics who respond to the call had ran on me before and knew the drill they stuck around long enough for me to sign the paper for them to leave. I believe the reason Liam was acting out was he sense my seizure coming on. We don't really understand people like Liam, I believe they have certain gifts, one of them might be the ability to percive things other don't. That two year old knew I was going to seize before I did, It' fancnating. I've been around special ed all my life never seen anything like it. I have more I want to write I start doing some work at UCP I want to tell you about that but it late and I have a early morning tomrrow, so another time.