Tuesday, July 14, 2009

Life on Mars and Nappy (diaper) pride

Yetserday I had a really bad seizure, I was with my friend Bryan and it really freaked him out. After the seizure I was really out of it. I am so frusated with these things. They have never been offically labeled seizures. The doctors are unsure what is going on. I'm going in to the esoilipy clinc next week hopeful we can figure out something, anything.

This entire thing doesn't make sense to me. It seems to me this have been figured out four years ago when it started. The sympthoms are very pronouced should be a easy dianoses. But there is a lot of thing I don't get. Like why some people say I they want to help to help the disabled when it obvious they don't. And why helping often times trying to cure. I don't understand why one of my childhood friend contiues to live with her mother who abuses her. I don't understand why so many families are disfunctional. My family is no exception. I have had no communcation with my father since 2003. He could be dead for all I know. My family is disfuntional in other ways too. I won't go into it. But families didn't use to be this way. I just don't understand why they are now. When I have a family it going to be full of Love, respect, understanding and accepting. Like all famlies should be.

On a different note www.communitycare.co.uk/blogs/social-care-experts-blog/2008/08/wear-a-nappy-with-pride.html

Above is an artrcle by Simon Stevens a business from the UK with CP and who also gay. He writes about attending pride in London. He writed who disabed people should be proud of who they are. I have often had the same thought when I attend the local gay pride event supporting my mom who is a lesbian. I think it would be great if al the disabled people had a parade downtown once a year to show how proud we were. Maybe people wouldn't pity us so much then and try to cure us. Simon had this wonderful shirt print admiting he wore a diaper in, his terms a nappy, I to wear a diaper. In my opinion it a common sense thing to do for anyone with any degree of incontince, itmake life so much easier. Why adult wearing diaper are such taboo. It goes back to what we are told we are potty training only babies wear diapers which is complete BS. Simon also talk the work used to discribled ourself. I don't feel comfortable being called a spatsic. But the disabled person doesn't fit either. I've tried calling myself simly a Cerebral Palsy and I find it fit s quite well.